Various charities and support organisations have produced leaflets and materials about palliative and end of life care, bereavement, advance planning and other relevant issues.

Some information is condition-specific, while other information is more general.

Finding support for a specific condition

If you have been diagnosed with a specific condition, it may be useful to find out whether there is a charity or support organisation that specialises in helping people in your situation.

Links to some useful organisations are provided below.

Marie Curie Cancer Care

Marie Curie Cancer Care has a patients and families section with information and advice on a range of issues.

Visit Marie Curie Cancer Care
Multiple System Atrophy Trust

The Multiple System Atrophy Trust produces a range of information publications for people interested in MSA.

This includes information sheets such as:

  • After Someone Has Died
  • Helping Children Cope
  • What a Child Understands about Dying
  • Understanding Palliative Care
Visit the Multiple System Atrophy Trust
Parkinson’s UK

Parkinson’s UK has a section dedicated to advanced illness.

This includes information for carers, a preparing for end of life booklet, and information sheets on dementia, pain and other symptoms, access to care, and legal and emotional issues.

Visit Parkinson’s UK